A Llangollen woman with an
incurable form of breast cancer says she is pleased to hear that the post of a
nurse specialising in its treatment has been funded for an another year.
Sarah
Marshall is one of five women patients from north Wales who have been campaigning
for the retention of the metastatic nurse post based at Wrexham Maelor Hospital
whose long-term funding had been in doubt.
But
confirmation has now been received by llanblogger from the Betsi Cadwaladr
University Health Board (BCUHB) that the post will be funded until March 31 next
year.
Sarah has been a cancer patient at Wrexham since 2017 and
since 2019 has been treated for metastatic breast cancer, which is incurable.
But for most of that time she hasn’t been too
unwell and has managed to do an MSc, run for county councillor, do the
Llangollen Round Challenge and choreograph local Operatic Society shows.
She said: “Concerned patients have been meeting with
senior BCUHB cancer staff since October 2023 to try and secure the future of a
Metastatic Breast Cancer Nurse post at Wrexham, which does not have permanent
funding.
“We are pleased to hear that despite some
mixed messages the Trust has now decided to extend the current arrangement
until March 2025.
“The Trust has
stated they wanted to conduct ‘a formal evaluation of the service ... this will
include feedback provided by patients and their families’ - their words in an
email to us from Head of Nursing, Cancer Division 27/3/2024. We hope they will
provide details of how patients can contribute to this soon.
“As one of our group put it ‘I've been more worried about the future of the nurse post than I have been about my own cancer’.
“The Trust themselves ‘recognise the benefits this important role has played in supporting patients across the Wrexham area’ – a letter from Carol Shillabeer, BCUHB Chief Exec 7/3/24.
“We really want to secure a permanent future for this post so that we are not in this position of uncertainty in less than a year’s time.
“We would urge any
Wrexham patients or carers who want to be involved in our patient led group to
improve Metastatic Breast Cancer care to contact Sarah Marshall at sarahllan567@gmail.com.”
In response to a query from llanblogger on behalf of the
campaigners, Mandy
Jones, Deputy Executive Director of Nursing at Betsi Cadwaladr University
Health Board, said: “We are pleased to confirm that funding for the Metastatic
Cancer Nurse Specialist position at Wrexham Maelor Hospital has been extended
up to the end of the current financial year (31 March 2025).
“This
is one of a number of posts being funded on a non-recurrent basis, using
temporary funding provided by Welsh Government to support enhanced performance
and transformation. Work is ongoing with Welsh Government to understand the
impact these funds have had over recent years in order to secure this funding
on an ongoing basis beyond 31 March 2025.
“We recognise the benefit this role has had in supporting patients across the Wrexham area and we are sorry for any concern this issue has caused in recent months. I can assure you that we remain fully committed to providing standards of cancer care in line with national guidance and best practice.”